178K views · 759 reactions | Ever heard the story of the blind men and the elephant? Each one feels a different part—one thinks it’s a snake (the trunk), another says it’s a tree (the leg), another insists it’s a fan (the ear). They’re all touching the same thing… just from different angles. That’s what MCAS (Mast Cell Activation Syndrome) can feel like. One doctor diagnoses migraines, another says it’s IBS, someone else calls it dermatitis… but no one’s seeing the whole elephant. When mast cells misfire, they can cause gut issues, skin flares, brain fog, fatigue, and more—because histamine is involved in everything. If you feel like you’ve been chasing puzzle pieces from different specialists, maybe it’s time to consider whether MCAS is the elephant in the room. 🐘 #mcas #mcasawareness #mastcell #mastcellactivationsyndrome #mastcellactivationdisorder #mastcelldisease #mastcellactivation #pots #potssyndrome #potsawareness #posturalorthostatictachycardiasyndrome #eds #ehlersdanlossyndrome | Zachary Spiritos | Facebook
6.6K reactions · 382 shares | I've been making lots of new connections to what I normalized as a kid, which turned out to be undiagnosed hEDS until I was 24 years old.. I'm honestly not sure i've ever lived without some sort of discomfort, but having a diagnosis has been so helpful in validating what's going on in my body I've since learned that it makes lots of sense that my joints, specifically my shoulder, neck, back & hip joints pop/dislocate more when i'm in my luteal phase approaching my period it's helped me to understand that i'm not just making up my pain just because it's inconsistent and shifting without reason it's helped to validate why when I was growing up I was frequently in a boot, on crutches, and wearing knee/ wrist braces when nothing would show up on x-rays or why I'd need to get my ankles wrapped for one lacrosse game, and get my knee wrapped for the next one or why I'd tell my parents that it felt like my back was internally bleeding when i'd bend over to do laundry or why I used to stretch for hours at a time because my body felt like a ball of tension no matter what I did after I got my endo diagnosis, I fell into blaming all of my pain on endo, which was understandable at the time because it was the only name I had to put to the pain I was feeling... but since getting a diagnosis of hEDS, everything started to click and now I feel like I'm more connected with my body & it's need for support than I ever have been #heds #hypermobile #ehlerdanlossyndrome #hypermobileehlersdanlossyndrome #eds | emma maxwell | Facebook
1.8K views · 1.6K reactions | What people think symptomatic joint hypermobility (hEDS/HSD) is -> party tricks & being good at yoga 🧘🏼♀️ 🤸🏼♀️ What it actually is... Stiffness. Constantly hydrating. So many comorbidities you lost count. Physical therapy for the rest of your life. Never not being in some type of pain. Crippling period pain. Brain fog. Tachycardia and orthostatic intolerance. Always wanting to live a normal life, but having to work harder than everyone else to do so. May is EDS awareness month 🦓. This month, I’m raising awareness about my lived experience and that of SO many of my clients and friends I have met since my diagnosis. ✨Also raising awareness that it is a spectrum and everyone’s symptoms will present a bit differently.✨ #edsawareness #hEDS #hypermobility #hypermobileehlersdanlossyndrome #hypermobilityspectrumdisorder #chronicillnessawareness #edsawarenessmonth | Dr. Nicole Woodruff, OTD | Pelvic Health • Hypermobility • POTS | Facebook
130K views · 7.9K reactions | The diagnostic process for symptomatic hypermobility like hypermobile Ehlers Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD) is not easy. Many providers are unaware of the clinical criteria and I’ve unfortunately heard of many people that have had their concerns completely dismissed because someone looked at them and because they were missing one thing, they excluded the possibility. The reality is that while many people do have some or all of these signs, it’s very possible to meet the criteria for hEDS without ANY of the signs I’m showing in this reel. 1. Thumb to forearm - this is just one of many joints, it’s very possible to be hypermobile in many other areas but not here. For example for me, this is the one area on the Beighton Score that I don’t meet, but I still score 7/9 based on the other joints. And..the Beighton Score misses MANY joints, so it’s possible to not meet the Beighton Score (at least 5/9 in adults) but still have HSD 2. History of recurrent dislocations - some people do have repeated dislocations, but it’s not required for the diagnosis 3. Stretchy Skin - excessively stretchy skin is a sign to look for genetically defined forms of EDS such as classical EDS and classical-like EDS. Mildly stretchy skin as you can see here on me (defined as 1.5cm on the volar forearm) is a feature of hEDS. 4. “Looking” a certain way - there is no one “look”. Many bendy people are drawn to things like dance and gymnastics, but it’s absolutely not a requirement. 5. 1st degree relative - there likely IS a first degree relative that also has hEDS or HSD..but since it is so poorly recognized many people go their whole lives undiagnosed. Is this confusing?? Absolutely. If you want to get more details you can find the 2017 hEDS diagnostic checklist on the EDS society website. It’s also currently under review with plans for an update hopefully sooner rather than later. Were you ever told there was no way you could have hEDS because you didn’t have one small feature? Share in the comments! #EhlersDanlossyndrome #hEDS #EDS #hypermobility | Melissa Koehl | Facebook
29K views · 4K reactions | It can be difficult to spot joint instability, especially since it doesn’t typically show up on static imaging like X-ray or MRI because you’re not moving when those images are taken. And before anyone gets too worried, it is possible to be hypermobile (meaning having more than “normal” range of motion), and be completely symptom free. However, when our neuromuscular system isn’t able to control that extra range of motion the joints can become unstable which creates increased stress to the joints, muscles, tendons, ligaments, discs, nerves, vessels etc. The most obvious signs of instability are dislocations. The next one would be subluxations, which are partial dislocations. Othertimes the instability causes a number of other symptoms as the joints are just moving around in an uncontrolled way, but if you were to take a static image like an X-ray or MRI everything would be fine. Often times imaging in instability is normal the image is not done while you’re in MOTION, which is where the inability occurs. If I had X-ray vision (how cool would that be btw ?!?!), I’d be able to see the joints moving, slipping and sliding around in each of the situations I’m showing in this reel. The signs aren’t hard and fast rules that mean things are unstable, but when you add several of these together, the suspicion does become much higher. Once you’ve identified that your joints have some level of instability, from a movement perspective doing specific work on to restore stability of not only the joint that is the most problematic but also the entire body because everything is connected. And…if you want to learn how to build that foundational stability in a hypermobile body, stay tuned! My intro program, Ground Control starts Mon March 24 and registration begins Mon March 17. More info coming soon! Have you experienced some of these situations? Any other signs of instability you’d add?? Share in the comments! #hypermobilespectrumdisorder #EDS #hEDS #EhlersDanlossyndrome #HSD #EDS | Melissa Koehl | Facebook
18K views · 2.5K reactions | IMPORTANT 👇 This isn’t a one size fits all. I’m not saying all AuDHDers have histamine issues, dysautonomia or even GI issues. Also not saying that each condition always triggers the next in this way. But I see this sequence of events so often in our clients and no one’s told them! These are documented comorbidities that can occur w/ AuDHD and many people are told to take care of end game things (like SIBO) first, which sets them up for cyclical symptoms. Order of operations can matter here! Also, there is SO much more to this that I couldn’t fit into this video. Studies/DOIs (we need more and better quality): https://doi.org/10.1016/j.anai.2023.10.032 10.1055/s-2004-817729 10.14309/ctg.0000000000000078 #audhd #audhder #sibo #dysmotility #dysautonomia #candida #adhdinwomen #fyp | Hypermobility Coach | Facebook
1.7K views · 3.5K reactions | I put the “fun” in “autonomic dysfunction”. 😅 *** POTS presents differently in every patient. some patients will not have all of these symptoms. some will have symptoms not named in this video. POTS can be mild and not affect much of a person’s life, but it can also be debilitating and disabling for others. this video is not meant to be used as a diagnostic tool. if you’re concerned about any of your symptoms, please see a doctor. check out @dysautonomiaintl for more in-depth information. POTS support groups on FB are also helpful! • • • #POTS #posturalorthostatictachycardiasyndrome #dysautonomia #autonomicdysfunction #hyperPOTS #hyperadrenergicpots #potsie #potsielife #autonmicnervoussystem #potsawareness #dysautonomiaawareness #chronicillness #chronicallyill #disabled #disability #spoonie #spoonielife | marissa 🎃 | Facebook
885K views · 7.4K reactions | Do you get Bloating & Distension?? We can help! Garry demonstrates a maneuver you can do that opens up your ileocecal valve. It's called the Psoas Release you can find it on our YouTube channel Human Garage TV. If you're looking to create permanent positive change in your health and life, you need to enrol into our next 28 day life reset starting Feb 15th. As a prerequisite you need to enrol in our 1 Day Reset by Feb 4th latest to complete the 1, 3 & 7 day resets. This will prepare you for the 28 day reset that begins Feb 15th! 🙌 Just head to our website humangarage.net or our link in bio for more info 🙂 | Human Garage | Facebook
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